“If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward.” - Martin Luther King, Jr.

A Thing of the Past

Still in remission and staying active.   =)

In Remission/Off Meds

I can officially report that I am off Prednisone and am still in remission since my HiCy treatment 2 years ago.
I have recovered a remarkable amount of muscle strength and continue to target the areas where the most damage occurred- hamstrings and glutes.
I am so thankful for the quality doctors and care I received at Hopkins. Myositis patients now have one more option for treatment.

Waterskiing

After many failed attemps, I finally discovered a system of holding on with one hand and pushing off one thigh to tuck and get vertical. I was yelling and laughing so hard I fell soon after.

On the slopes

I went down-hill skiing in March! I cannot express with words how wonderful it was to go fast at something, anything...going fast is something this thrill-seeker stuck in first gear has surely missed. I was a little awkward walking in the boots, but then after a few runs, muscles loosened up and I was doing the blue trails!

Finally

CK is down a bit more and I am officially in the normal range at 224.
I have not seen a lab printout without an H for High next to CK in 3 1/2 years.

One Year Later - Strength Comparison